| Affiliation: | 1.National Centre for Rare Diseases,Istituto Superiore di Sanità,Rome,Italy;2.National Research Council,Rome,Italy;3.Jamarau,London,UK;4.Karolinska Institutet,Stockholm county,Sweden;5.Healthcare Improvement Scotland,Edinburgh,Scotland;6.London School of Economics and Political Science,London,UK;7.EURORDIS, European Organisation for Rare Diseases,Paris,France;8.Associazione per la Ricerca sull’Efficacia dell’Assistenza Sanitaria Centro Cochrane Italiano,Milan,Italy;9.University of Freiburg,Freiburg,Germany;10.Bulgarian Association for Promotion of Education and Science,Plovdiv,Bulgaria;11.Fundación Canaria de Investigación y Salud,Las Palmas de Gran Canaria,Canary Islands;12.Universiteit Maastricht,Maastricht,the Netherlands;13.University of Newcastle Upon Tyne,Newcastle,UK;14.The European Academy of Paediatrics,Geneva,Switzerland;15.Institute of Rare Diseases Research,Instituto de Salud Carlos III,Madrid,Spain |
