Calidad de vida y sobrecarga de los cuidadores de pacientes con daño cerebral adquirido |
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Authors: | Javier Mar Arantzazu ArrospideJosé María Begiristain Isabel LarrañagaAitor Sanz-Guinea Ignacio Quemada |
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Institution: | a Unidad de Gestión Sanitaria, Hospital Alto Deba, Mondragón, España b Unidad de Investigación Sanitaria de Gipuzkoa Oeste, Hospital Alto Deba, Mondragón, España c Dirección Territorial de Sanidad de Gipuzkoa, Gobierno Vasco, Donostia-San Sebastián, España d Unidad de Daño Cerebral, Hospital Aita Menni, Mondragón, España |
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Abstract: | IntroductionThe health impact of acquired brain injury (ABI) is not only apparent in the patient, but also in the loss of health related quality of life (HRQol) of their carers. The objectives of this study were to measure the loss of HRQol as well as the burden of the carers of patients with ABI.Material and methodsA retrospective study was conducted with 76 carers of patients with ABI. A questionnaire was used to collect information on the sociodemographic aspects, carer burden (Zarit Scale) and the HRQol (EuroQol Questionnaire) of the carers. A multiple linear regression model was constructed to analyse the effect of the different variables.ResultsThe carers were predominantly women over 50 years, retired or dedicated to domestic tasks and who cared for their husband or one of their parents. One third showed a high risk of claudication. The mean HRQol obtained with the EuroQol went from a similar score to that of the general population (0.9) in the group without burden, to 0.67 in the group with risk of claudication. The regression models explained the burden better than the loss in quality of life.ConclusionsCarers of patients with brain injury suffer a significant loss in HRQol compared to the general population. The deterioration arises from the mental dimensions and depends on the level of burden. |
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Keywords: | Cuidadores Calidad de vida Sobrecarga Dañ o cerebral adquirido |
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