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Engagement and return of results preferences among a primarily African American genomic sequencing research cohort
Authors:Katie L. Lewis  Erin Turbitt  Priscilla A. Chan  Sandra Epps  Barbara B. Biesecker  Lori A.H. Erby  Grace-Ann Fasaye  Leslie G. Biesecker
Affiliation:1. Medical Genomics and Metabolic Genetics Branch, National Human Genome Research Institute, Bethesda, MD 20892, USA;2. Social and Behavioral Research Branch, National Human Genome Research Institute, Bethesda, MD 20892, USA;3. Research Triangle Institute, Washington, DC 20005, USA;4. Genetics Branch, National Cancer Institute, Bethesda, MD 20892, USA
Abstract:
Keywords:genome sequencing  African Americans  patient engagement  result return  focus groups  patient preference
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