Longitudinal proxy measurements in multiple sclerosis: patient-proxy agreement on the impact of MS on daily life over a period of two years |
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| Authors: | Femke AH van der Linden Jolijn J Kragt Margarethe van Bon Martin Klein Alan J Thompson Henk M van der Ploeg Chris H Polman Bernard MJ Uitdehaag |
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| Affiliation: | (1) Department of Neurology, VU University Medical Centre, Amsterdam, The Netherlands;(2) Medical Psychology, VU University Medical Centre, Amsterdam, The Netherlands;(3) Clinical Epidemiology and Biostatistics, VU University Medical Centre, Amsterdam, The Netherlands;(4) Neurological Outcome Measures Unit, Institute of Neurology, London, UK |
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| Abstract: | Background The use of self-report measurements in clinical settings is increasing. However, in patients with limitations that interfere with reliable self-assessment such as cognitive impairment or mood disturbances, as may be the case in multiple sclerosis (MS), data collection might be problematic. In these situations, information obtained from proxy respondents (e.g. partners) may replace self-ratings. The aim of this study was to examine the value of proxy ratings at separate points in time and to assess patient-proxy agreement on possible changes in disease impact of MS. |
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