The Old Order Amish: Lessons From Kansas Ethnography

Abstract

Although they are widely known in the United States, the Old Order Amish present a puzzling face to both social science and popular media. This puzzle can be seen to arise from inaccurate notions of Amish life and an inadequate analytical paradigm for Amish ethnicity. ‘Both these features are especially evident in the case of the Amish of central Kansas; research in this area suggests that the fundamental sources of Amish distinctiveness are cultural rather than social and independent of technological backwardness of social isolation     

Linkage of bipolar affective disorders to markers on chromosome 11p is excluded in a second lateral extension of Amish pedigree 110.

Linkage between markers on chromosome 11p and bipolar affective disorders can be excluded in a second large lateral extension of the original Amish Pedigree 110. These results, together with previous negative linkage findings, suggest that there is not one single gene on 11p conferring susceptibility for bipolar affective disorders among the Old Order Amish.     

Genetic variability of HLA in the Dariusleut Hutterites. A comparative genetic analysis of the Hutterities, the Amish, and other selected Caucasian populations.

There are three endogamous subdivisions of the Hutterite population, a North American religious isolate. These individuals live on communal farms, and residence is strictly patrilocal. We report on the distributions of HLA-A and B alleles and haplotypes in 203 married women from one subdivision--the Dariusleut--in Alberta, Canada. We demonstrate that there is significant linkage disequilbrium among a large fraction of the distinct haplotypes in the Dariusleut Hutterite data; there is a restriction in the number of distinct haplotypes present in the Dariusleut; the Hutterites and the Old Order Amish (Lancaster County, Pennsylvania) are the most genetically distant pair of populations in an ensemble of 11 Caucasian populations; and, finally, the Old Order Amish and the Hutterites are approximately as distant from the Indiana Amish as they are from the eight other Caucasian populations, which are tightly clustered in the space of gene frequencies. These results are consistent with the fact that the Amish and the Hutterites are genetic isolates with small numbers of founders. Certain haplotypes show significant linkage disequilibrium in these as well as in other Caucasian samples. Thus, some of the linkage disequilibrium antedates the formation of these Anabaptist sects.     

Lawful Sinners: Reproductive Governance and Moral Agency Around Abortion in Mexico

The Catholic Hierarchy unequivocally bans abortion, defining it as a mortal sin. In Mexico City, where the Catholic Church wields considerable political and popular power, abortion was recently decriminalized in a historic vote. Of the roughly 170,000 abortions that have been carried out in Mexico City's new public sector abortion program to date, more than 60% were among self-reported Catholic women. Drawing on eighteen months of fieldwork, including interviews with 34 Catholic patients, this article examines how Catholic women in Mexico City grapple with abortion decisions that contravene Church teachings in the context of recent abortion reform. Catholic women consistently leveraged the local cultural, economic, and legal context to morally justify their abortion decisions against church condemnation. I argue that Catholic women seeking abortion resist religious injunctions on their reproductive behavior by articulating and asserting their own moral agency grounded in the contextual dimensions of their lives. My analysis informs conversations in medical anthropology on moral decision-making around reproduction and on local dynamics of resistance to reproductive governance. Moreover, my findings speak to the deficiencies of a feminist vision focused narrowly on fertility limitation, versus an expanded framework of reproductive justice that considers as well the need for conditions of income equality and structural supports to facilitate reproduction and parenting among women who desire to keep their pregnancies.     

Maternal lineages and Alzheimer disease risk in the Old Order Amish

Old Order Amish, founded by a small number of Swiss immigrants, exist in culturally isolated communities across rural North America. The consequences of genetic isolation and inbreeding within this group are evident by increased frequencies of many monogenic diseases and several complex disorders. Conversely, the prevalence of Alzheimer disease (AD), the most common form of dementia, is lower in the Amish than in the general American population. Since mitochondrial dysfunction has been proposed as an underlying cause of AD and a specific haplogroup was found to affect AD susceptibility in Caucasians, we investigated whether inherited mitochondrial haplogroups affect risk of developing AD dementia in Ohio and Indiana Amish communities. Ninety-five independent matrilines were observed across six large pedigrees and three small pedigrees then classified into seven major European haplogroups. Haplogroup T is the most frequent haplogroup represented overall in these maternal lines (35.4%) while observed in only 10.6% in outbred American and European populations. Furthermore, haplogroups J and K are less frequent (1.0%) than in the outbred data set (9.4–11.2%). Affected case matrilines and unaffected control lines were chosen from pedigrees to test whether specific haplogroups and their defining SNPs confer risk of AD. We did not observe frequency differences between AD cases compared to controls overall or when stratified by sex. Therefore, we suggest that the genetic effect responsible for AD dementia in the affected Amish pedigrees is unlikely to be of mitochondrial origin and may be caused by nuclear genetic factors.     

A jury of none: an essay on the last acceptable form of civic banishment

Though many socio-legal scholars have criticized those measures that deny convicted felons the right to vote, few have challenged the statutes that withhold a convicted felon’s opportunity to sit on a jury. A majority of US jurisdictions bar felons from jury service permanently, creating a class of citizens defined and punished by the criminal justice system but unable to impact its function. This essay considers the invisibility of felon jury exclusion, notes its unlikely supporters, and asserts that by preventing convicted felons from taking part in civic processes, authorities work against reentry initiatives.     

Epigenetics for the social sciences: justice,embodiment, and inheritance in the postgenomic age

In this paper, I firstly situate the current rise of interest in epigenetics in the broader history of attempts to go “beyond the gene” in twentieth-century biology. In the second part, after a summary of the main differences between epigenetic and genetic mutations, I consider what kind of implications the sui generis features of epigenetic mutations may have for the social sciences. I focus in particular on two sites of investigation: (a) the blurring of the boundaries between natural and social inequalities in theories of justice and their possible implications for public policy and public health and (b) a deepening of the notion that the constitution of the body is deeply dependent on its material and socially shaped surroundings (“embodied constructivism”). In conclusion, I advance some cautionary reflections on some of the (known and unprecedented) problems that the circulation of epigenetics in wider society may present.     

Blood groups in two Amish demes

Blood group studies in two Old Order Amish isolates support previous evidence for genetic differences in the two groups. The more completely studied Amish community, that of Lancaster Co., Pa., revealed higher A and lower O phenotype frequencies than found in the Amish of Holmes Co., Ohio. In both groups, about one-fourth of individuals are Rh negative. Three blood group genes (Kell-positive, CD^ue and CDE) are present in low frequency in the Lancaster Amish, and pedigree studies identified individuals who may have introduced them to the Amish. Preliminary studies of an unusual antibody found in one Amish female provide evidence for a new red cell antigen which is present in about one-fourth of Americans.     

Linkage Analyses of Chromosome 18 Markers Do Not Identify a Major Susceptibility Locus for Bipolar Affective Disorder in the Old Order Amish

Previously reported linkage of bipolar affective disorder to DNA markers in the pericentromeric region of chromosome 18 was reexamined in a larger homogeneous sample of Old Order Amish families. Four markers (D18S21, D18S53, D18S44, and D18S40) were examined in three kindreds containing 31 bipolar I (BP I) individuals. Although linkage findings were replicated in the one previously studied Amish pedigree containing four BP I individuals, linkage to this region was excluded in the larger sample. If a susceptibility locus for bipolar disorder is located in this region of chromosome 18, it is of minor significance in this population.     

Genetic homogeneity of cartilage-hair hypoplasia

Cartilage-hair hypoplasia (CHH) is an autosomal recessive metaphyseal chondrodysplasia characterized by short stature and hypoplasia of the hair. Associated pleiotropic features include deficient erythrogenesis, impaired T-cell mediated immunity, Hirschsprung's disease, and an increased risk of malignancies. CHH is most prevalent among the Old Order Amish in the United States and among the Finns, but sporadic families have been described among many other populations. We have previously mapped the gene for CHH to the short arm of chromosome 9 in Finnish and Amish families. The CHH locus resides close to D9S163 within an interval of 1.5 cM flanked by D9S165 and D9S50. In order to investigate the genetic homogeneity of CHH in various populations, we studied nine families with no genealogical connections to either Amish or Finns. No recombinants were detected between the CHH gene and any of the three closest marker loci studied, suggesting that CHH in these families results from mutation(s) at the same locus as in the Amish and Finnish families.     

Living the Good Life? Mortality and Hospital Utilization Patterns in the Old Order Amish

Lifespan increases observed in the United States and elsewhere throughout the developed world, have been attributed in part to improvements in medical care access and technology and to healthier lifestyles. To differentiate the relative contributions of these two factors, we have compared lifespan in the Old Order Amish (OOA), a population with historically low use of medical care, with that of Caucasian participants from the Framingham Heart Study (FHS), focusing on individuals who have reached at least age 30 years.Analyses were based on 2,108 OOA individuals from the Lancaster County, PA community born between 1890 and 1921 and 5,079 FHS participants born approximately the same time. Vital status was ascertained on 96.9% of the OOA cohort through 2011 and through systematic follow-up of the FHS cohort. The lifespan part of the study included an enlargement of the Anabaptist Genealogy Database to 539,822 individuals, which will be of use in other studies of the Amish. Mortality comparisons revealed that OOA men experienced better longevity (p<0.001) and OOA women comparable longevity than their FHS counterparts.We further documented all OOA hospital discharges in Lancaster County, PA during 2002–2004 and compared OOA discharge rates to Caucasian national rates obtained from the National Hospital Discharge Survey for the same time period. Both OOA men and women experienced markedly lower rates of hospital discharges than their non-Amish counterparts, despite the increased lifespan.We speculate that lifestyle factors may predispose the OOA to greater longevity and perhaps to lesser hospital use. Identifying these factors, which might include behaviors such as lesser tobacco use, greater physical activity, and/or enhanced community assimilation, and assessing their transferability to non-Amish communities may produce significant gains to the public health.     

A novel nemaline myopathy in the Amish caused by a mutation in troponin T1

The nemaline myopathies are characterized by weakness and eosinophilic, rodlike (nemaline) inclusions in muscle fibers. Amish nemaline myopathy is a form of nemaline myopathy common among the Old Order Amish. In the first months of life, affected infants have tremors with hypotonia and mild contractures of the shoulders and hips. Progressive worsening of the proximal contractures, weakness, and a pectus carinatum deformity develop before the children die of respiratory insufficiency, usually in the second year. The disorder has an incidence of approximately 1 in 500 among the Amish, and it is inherited in an autosomal recessive pattern. Using a genealogy database, automated pedigree software, and linkage analysis of DNA samples from four sibships, we identified an approximately 2-cM interval on chromosome 19q13.4 that was homozygous in all affected individuals. The gene for the sarcomeric thin-filament protein, slow skeletal muscle troponin T (TNNT1), maps to this interval and was sequenced. We identified a stop codon in exon 11, predicted to truncate the protein at amino acid 179, which segregates with the disease. We conclude that Amish nemaline myopathy is a distinct, heritable, myopathic disorder caused by a mutation in TNNT1.     

公众对植物园功能定位和形象认知的初步调查

作为生物多样性保护的专业机构, 植物园可以通过开展公众教育来发挥作用, 而公众对植物园的功能定位和形象认知将会影响其作用的发挥。作者分别选择1个研究型植物园(中国科学院西双版纳热带植物园, 简称版纳植物园)和1个城市植物园(杭州植物园)为研究对象, 同时以版纳植物园同域分布的西双版纳野象谷森林公园(简称野象谷)为对照, 调查公众对上述3个机构的功能定位和形象认知。研究结果表明: (1)在功能定位方面, 参观两个植物园的游客对植物园是“物种收集和保存的机构”、“开展公众教育, 提高环境意识的机构”和“促进生物多样性保护的专业机构”三个方面有显著的认同度; 对版纳植物园是“科学研究的机构”、“培养训练专业人才的机构”和“提供相关专业资讯和咨询的机构”三个方面也有显著的认同度; (2)同域分布的版纳植物园和野象谷相比, 公众对二者的大多数功能定位认知存在显著差异; (3)在形象认知方面, 公众对3个机构“空气新鲜, 环境宜人”、“具有外面看不到的动植物”、“景色优美, 赏心悦目”以及“是回归自然的地方”认可度显著; 对版纳植物园“是增长科学知识的地方”的认可度最高, 而野象谷的公众对此认可度最低。调查结果可为植物园更好地开展生物多样性保护教育、改善形象以及提高公众服务水平提供有益的借鉴。     

Birth seasonality in the Old Order Amish

The Old Order Amish are a healthy and well-nourished natural fertility population, so that the timing of births is not influenced by behaviours to limit family size, undernutrition or disease. The present study examines the monthly distribution of 8160 births occurring between 1920 and 1991 in the Geauga Settlement in north-east Ohio, USA. The monthly distribution of births in the Geauga Settlement is bimodal, with a major peak extending from August to October, a minor peak in February, and a major trough from April to June. This pattern is almost identical to the pattern found in the US in 1943. The monthly distribution of first births appears to be influenced to some extent by a highly significant seasonal pattern of weddings. The pattern of births in the Old Order Amish is consistent with the hypothesis that the spring trough in US births is at least partially caused by a decrease in coital frequency and/or a decrease in fecundability as a result of hot summer temperatures but is not consistent with the hypothesis that the fall peak in US births is primarily due to an increase in coital frequency during the Thanksgiving and Christmas holiday seasons.     

Development through paper deals: space and politics of value in peri-urban India

The article looks at contestations over space in peri-urban India. It studies the acrimonious responses in defense of a local marketplace that occupied public land against the sovereign project of highway expansion in peri-urban West Bengal. It posits an opposition between two aspects of state governance—rational–legal and magical—that shape the contentions. In the rational–legal mode, the expansion of the highways represents the official development goals of progress. The magical aspects of the state engender the circulation of officially approved illegal chits that give occupying migrant villagers’ claim to the space around the highway. The ethnography looks at the affective economy of illegal chits that political parties and local bureaucracies use to bring migrating villagers within their ambit. It explores how illegal chits embody the state’s legible presence in the villagers’ everyday lives, their kinnetworks, communities and transform individual affective orientations toward space. In these new modes of simultaneous “space” and “place” making, public land is understood less as commons, but more as a stretch that could be divided among individuals and households aspiring to be “developed” or upwardly mobile by excluding others. The essay contends that emergence of the “right to the city” as a collective right requires a double-edged critique. A simple celebration of the subversive potential of the magical aspect of the state vis-à-vis its rational–legal mode may not be helpful for a politics of value that seeks to challenge the idea of value (or what makes life worth living) embedded in the wider neoliberal development discourse.     

Quantifying effects of legal and non-legal designations of alien plant species on their control and profile

Invasive alien species (IAS) pose serious threats to native ecosystems worldwide. In some regions, laws and/or lists related to alien species have been made, but their effects on actual measures against alien species have been little studied. In Japan the IAS act, which came into force in 2005, lists many harmful species under the heading “Designated IAS”. The importation, domestication, sale or release of these species is tightly regulated. In addition, other species are named as alerted alien species (AASs) on the “alien species alert list” to raise public awareness. In this paper we examined the situation in Japan as case study that is exposed to threats from alien species under such laws in recent year to evaluate the effects of that for public interesting. We conducted a survey of the effects of the legal designation and other classification of alien plant species, examining a number of aspects, including research publications, eradications and public awareness. In our analysis, the degree of harmfulness of IASs was considered on the basis of weed risk assessment (WRA). The results show that legal classification of IASs has led to increases in research focused on the designated species, eradication efforts and public awareness. Similar results were also apparent for some AASs, but there was a great deal of variability among the many sub-categories of AASs. This may be partly because AAS sub-categories are based on different premises, and partly because the identification of AASs is not necessarily linked to legal controls that affect the behavior of individuals.     

Video for Development

This paper breaches the traditional frontiers of visual anthropology and argues for a greater advocacy role within the research-based community. Arguing that visual anthropology should now move “beyond theory” to the more pragmatic science of “development communication,” the paper examines techniques commonly used in ethnographic film, and analyzes media case studies from development projects in Egypt and Pakistan. It demonstrates that video can capture voices and communicate ideas to planners and policy makers better than any other communication tool, and achieve a greater impact in transforming, for example, the image of rural women and the hierarchies of power that constrain their participation in development. It concludes that visual anthropologists, as media producers, are uniquely well equipped to use their expertise and knowledge of the field and of local languages to act as mediators, spurring interactions and building consensus between different developmental “actors.” In this way they could work to instigate public health reforms in poor communities and contribute to wealth creation by engaging in the process of development communications.     

Factors Affecting Risk Perception of Electromagnetic Waves From 5G Network Base Stations

The coverage of the fifth-generation network has increased steadily since the network was introduced in 2019. However, public protests around the globe against the construction of 5G network base stations have continued to occur for fear that electromagnetic (EM) waves emitted from the stations would cause adverse health effects. To identify factors that have contributed to such increased risk perception, we conducted a cross-sectional study using data obtained from a survey that assessed Korean adults’ risk perception of EM wave-related objects. We found that female gender, high level of perceived exposure to EM waves, evaluation of public policies as ineffective, and high level of objective knowledge on EM waves were associated with increased risk perception. Furthermore, we found that higher ratings on a few risk characteristics such as “personal knowledge,” “seriousness of the risk to future generations,” “dreadfulness,” and “severity of consequences” were also associated with increased risk perception as well. Bioelectromagnetics. © 2020 The Authors. Bioelectromagnetics published by Wiley Periodicals LLC on behalf of Bioelectromagnetics Society     

The expanding prisoner reentry industry

The prisoner reentry industry (PRI) has become a major part of the Social Control Industrial Complex. As with the Prison Industrial Complex, the PRI is not just a collection of institutions, organizations, and interest groups (both public and private); it is also a state of mind. Developing and facilitating programs and services for the formerly incarcerated have become a huge “cash-cow,” producing profits for the PRI at the expense of the taxpayer, while doing little to link the formerly incarcerated person to the social capital and human skills necessary to become a “citizen.” Data that include the voices of the formerly incarcerated, members of their families, and criminal justice practitioners suggest that a person’s level of success during their “personal reentry experience” varies in large part, by the individual parole officer they are assigned to and the number and types of programs they are required to participate in. Furthermore, their quality of life after release and their level of success is determined in large part by the program administrators managing those “for-profit companies” and “non-profit/for-profit agencies,” that supervise parolee programs. The argument here is that there must be a better system for monitoring the activities of those organizations that are in the business of facilitating prisoner reentry-related services. A process of accountability that will ensure that organizations part of the PRI are in fact providing services in the manner that was stated and agreed upon during their request for funding. The most important tool for ending this cycle lies in creating employment opportunities for the formerly incarcerated and empowering them to access those resources afforded all citizens. Consequently, if those agencies and organizations in the business of facilitating prisoner reentry were successful at making available the services they argue they do provide, members of these organizations would work themselves out of a job; that would be a valid indicator of organizational success.