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1.
Abstract

The issue of human cloning has received intense media and political attention since the cloning of Dolly the sheep was announced in 1997. This research explores the discursive basis for support and opposition to human cloning by examining the role of abortion-related rhetoric in constructing the concept of human cloning within the American press. An in-depth content analysis of human cloning news coverage was conducted on a sample of articles collected from the mainstream press as well as advocacy publications with either a pro-science or Christian fundamentalist orientation. Statistically significant differences were found indicating an important role for abortion rhetoric in the human cloning debate. This expansion of abortion rhetoric into the domain of science policy portends a unique and growing problem for resolving bioethical debates within American politics over the future development of biomedical technologies such as human cloning.  相似文献   

2.

This paper examines the public understanding of science, especially biotechnology and the new genetics, in light of the symbolic roles of animals in the constitution of cultural identities. As such, the paper expands on the critical approach to public understanding of science, with its emphasis upon the way local identities impact upon the apprehension of, and trust in, science and scientific institutions. In particular, the new genetics raises issues about what sorts of broader public identities are mobilized. It is argued that, on the one hand, the complex symbolic role of animals is linked to a wide and contradictory range of modern Western identities, and thus potentially to volatility in the public's response to such biotechnological innovation. On the other, technoscientific bespoking, by rendering animals 'ready-to-order', might catastrophically curtail the symbolic role of animals in human identities, and thus provoke a general anxiety toward new genetics. Some political and research implications of the analysis are briefly explored.  相似文献   

3.
This article offers an analysis of the way private insurers deal with the issue of genetics and insurance. Drawing on specific written insurance sources, a reconstruction is made of internal debates on genetics and insurance within the private insurance world in Europe and the United States. The article starts by analyzing the way insurers initially framed the issue of genetics. It proceeds by showing how ideas with respect to this issue developed beyond public policy debates in the nineties. Although not a strictly linear development, a trend towards a change in perspective can be demonstrated: at the beginning most insurance companies took another stance than they do nowadays. The article concludes by questioning the effect of these changes within the insurance world for the definition of the problem with respect to genetics and insurance. Does taking into account the public concerns around genetics also include taking genetics as a public problem?  相似文献   

4.
Abstract

This article explores the processes through which the advances of genetic research are incorporated into public health care in Denmark. Drawing on ethnographic fieldwork in cancer genetic counselling, the implementation of new medical advances is investigated by following the establishment of a policy on informing relatives at risk of hereditary cancer. This case material provides the occasion to examine how policies are shaped in a governmental process through which different actors seek to establish a common goal for a specific health practice. The struggle to define such a goal implies a struggle to define where to draw the line between health and disease and what makes up a healthy person in the context of genetic knowledge. The authors argue that in the process of establishing a policy in the field of cancer genetics the imperative of prevention comes to provide the framework within which an ethics of rights and responsibilities is constituted and the target group of cancer genetic counselling defined. This ethics is not determined by or inherent in genetic technology itself, but constituted in a social process and therefore negotiated within pre-existing frameworks of understanding in professional practice.  相似文献   

5.
This essay reviews the efforts of the U.S. Human Genome Project to anticipate and address the ethical, legal, and social implications of new advances in human genetics. Since 1990, approximately $10 million has been awarded by the National Institutes of Health and the Department of Energy, in support of 65 research, education, and public discussion projects. These projects address four major areas of need: (1) the need for both client-centered assessments of new genetic services and for improved knowledge of the psychosocial and ethnocultural factors that shape clients' clinical genetic experiences; (2) the need for clear professional policies regarding human-subject research, clinical practice standards, and public health goals in human genetics; (3) the need for social policy protection against unfair access to and use of personal genetic information; and (4) the need for improved public and professional understanding and discussion of these issues. The Human Genome Project's goal is to have defined, by 1995, policy options and programs capable of addressing these needs.  相似文献   

6.
7.
Many achievements in the genome sciences have been facilitated by policies that have prioritized genome research, secured funding and raised public and health-professional awareness. Such policies should address ethical, legal and social concerns, and are as important to the scientific and commercial development of the field as the science itself. On occasion, policy issues take precedence over science, particularly when impasses are encountered or when public health or money is at stake. Here we discuss the spectrum of current issues and debates in genome policy, and how to actively engage all affected stakeholders to promote effective policy making.  相似文献   

8.
《Anthrozo?s》2013,26(4):151-159
ABSTRACT

Animal protection advocates are making use of paid and public service advertising to promote the interests of animals. One advertising approach, the graphic portrayal of animal suffering, has generated controversy within and beyond the animal protection movement. Research suggests that the approach can be effective in stimulating those viewing the advertisement to take action on behalf of animals. Other advertising strategies that may be capable of provoking more humane treatment of animals include tacit depictions of animal suffering and reversing human-animal traits and situations through therianthropic and unconventional anthropomorphic imagery. Advertisements from current and former animal protection campaigns were reviewed for examples of these animal representational strategies. This is the final in a series of papers on the role of mass media in animal protection. Previous articles detailed a history of media coverage of animal protection issues, the role of the media in the animal rights movement, and the effect of the media on public policy decisions concerning animals (Jones 1996, 1997a and b).  相似文献   

9.
Concerns about bioethical issues raised by scientific developments in genetics are a common feature of both public and policy debates in the UK. This article sets out how one such body, the Nuffield Council on Bioethics, contributes to public and policy debates, and provides information about similar bodies in the UK and around the world.  相似文献   

10.
Increasingly scientists and governmental policymakers find themselves leaving their laboratories and office cubicles to share information and decision making with the general public. Contributing in large part to the development of science communication via the mass media has been the Human Genome Project (HGP). Examining the development of the HGP in the United States beginning with the early 1970s helps to establish why and how the general public has become a major player in science policy in the United States during the past quarter century, especially in regard to the ethical, legal, and social implications of research on human genetics. Calling into question the technological imperative--the idea that all things scientific must be pursued without question--the general public came to realize that exerting control over research funding is the key to participating in the scientific process.  相似文献   

11.

Increasing scientific and commercial interest is being paid to the creation of large population-based genetic databases to study the relationship between genes and disease. This paper will use ideas from the sociology of technology to look at the network of actors involved in the production, use and commercial exploitation of human genetic data, the social and ethical issues posed by genetic databases and the development of new governance arrangements in this domain. It will be argued that we are witnessing the creation of a new type of research system in the field of human genetics, which also forms the centre of an emerging market for personal and population-based genetic information. Some proposals for improving the governance of human genetic data in the UK will be offered in conclusion.  相似文献   

12.
《Anthrozo?s》2013,26(2-3):72-80
ABSTRACT

This is the first in a series of papers that will explore the role of the American media in animal protection. This paper tracks the history of media coverage of animal issues from the early American humane movement of the last century to the animal rights movement of today. In addition, research conducted on trends in print media coverage is presented and reviewed. Future papers will evaluate the media's involvement in social movements, the use of advertising to promote animal protection, and the impact of media coverage on the outcome of public policy decisions concerning animals.  相似文献   

13.
The popular media has emerged as an important source of scientific information. It has been suggested that the portrayal of genetics by the media is often inaccurate--a phenomenon branded 'genohype'--and, as a result, is having an adverse impact on public understanding and policy development. However, emerging data suggest that, in some circumstances, the media reporting of science is surprisingly accurate and portrays a message created by the scientific community. As such, there are reasons to believe that the hyping of research results might be part of a more systemic problem associated with the increasingly commercial nature of the research environment.  相似文献   

14.
ABSTRACT

This article analyses the political and media discourses on Roma in Hungary, Finland and the UK, in relation to the local Roma in these countries as well as those who migrated from Central and Eastern Europe countries following the fall of communism. The authors have analysed left of centre and right of centre major newspapers in these three countries, focusing on specific case studies which were the foci of public debates during the last two decades. We also examined a common case study in 2013 (“blond Maria”) that was discussed throughout Europe. In each news paper, the constructions of Roma, local and migrant, and the changes to related discourses over the period were studied. In conclusion, we examine the multi-layered processes of social and political borderings in Europe which dominate discourses on Roma, “indigenous” and migrant, and the extent to which they constitute a coherent “European” construction of “the Roma”.  相似文献   

15.
Going to the roots of the stem cell controversy   总被引:3,自引:0,他引:3  
Holm S 《Bioethics》2002,16(6):493-507
The purpose of this paper is to describe the scientific background to the current ethical and legislative debates about the generation and use of human stem cells, and to give an overview of the ethical issues underlying these debates.
The ethical issues discussed are 1) stem cells and the status of the embryo, 2) women as the sources of ova for stem cell production, 3) the use of ova from other species, 4) slippery slopes towards reproductive cloning, 5) the public presentation of stem cell research and 6) the evaluation of scientific uncertainty and its implications for public policy.  相似文献   

16.
The exchange of gametes has polarized and captivated the attention of biomedical practitioners, policy stakeholders, ethicists, and the general public alike. Studies have thoroughly explored the unique histories of this industry, its economies, legal statutes that influence clinical practice, motivating factors of donors, as well as debates on differentiating donor, offspring, and family rights from each other. This mixed-method study refocuses the analytical lens to examine the perceptions and decision-making processes of individual willingness to participate in gamete exchange networks in the United States for procreative or research purposes. Analyses revealed that individuals engage in a form of self-biocommodification, where ascribed values of gametes are explained as embodied capital and rationalized by Western biomedical explanatory models of genetics and reproduction. This work contributes to social scientific explanations of biocommodification while providing new points of departure in reconceptualizing science and technology studies through the perspectives of potential actors in gamete exchange networks.  相似文献   

17.
Richard Lewontin proposed that the ability of a scientific field to create a narrative for public understanding garners it social relevance. This article applies Lewontin's conceptual framework of the functions of science (manipulatory and explanatory) to compare and explain the current differences in perceived societal relevance of genetics/genomics and proteomics. We provide three examples to illustrate the social relevance and strong cultural narrative of genetics/genomics for which no counterpart exists for proteomics. We argue that the major difference between genetics/genomics and proteomics is that genomics has a strong explanatory function, due to the strong cultural narrative of heredity. Based on qualitative interviews and observations of proteomics conferences, we suggest that the nature of proteins, lack of public understanding, and theoretical complexity exacerbates this difference for proteomics. Lewontin's framework suggests that social scientists may find that omics sciences affect social relations in different ways than past analyses of genetics.  相似文献   

18.
Online social media such as Twitter are widely used for mining public opinions and sentiments on various issues and topics. The sheer volume of the data generated and the eager adoption by the online-savvy public are helping to raise the profile of online media as a convenient source of news and public opinions on social and political issues as well. Due to the uncontrollable biases in the population who heavily use the media, however, it is often difficult to measure how accurately the online sphere reflects the offline world at large, undermining the usefulness of online media. One way of identifying and overcoming the online–offline discrepancies is to apply a common analytical and modeling framework to comparable data sets from online and offline sources and cross-analyzing the patterns found therein. In this paper we study the political spectra constructed from Twitter and from legislators'' voting records as an example to demonstrate the potential limits of online media as the source for accurate public opinion mining, and how to overcome the limits by using offline data simultaneously.  相似文献   

19.

The mapping and sequencing of the human genome has been the 'Holy Grail' of the new genetics, and its publication marks a turning point in the development of modern biotechnology. However, the question remains: what has been the impact of this discovery on how biotechnology develops in science, and in society at large? Using concepts developed in the social studies of science and technology, the paper begins by rehearsing the historical development of the Human Genome Project (HGP), and suggests that its translation into genomics has been achieved through a process of 'black-boxing' to ensure stabilization. It continues by exploring the extent to which the move to genomics is part of a paradigm shift in biotechnology resulting from the conceptual and organizational changes that have occurred following the completion of HGP. The discussion then focuses on whether genomics can be seen as part of the development of socially robust knowledge in late modernity. The paper suggests that there is strong evidence that a transformation is indeed taking place. It concludes by sketching a social scientific agenda for investigating the reconstitution of the new genetics in a post-genomic era using a 'situated' analytic approach based on an understanding of techno-scientific change as both emergent and contingent.  相似文献   

20.
Abstract

Genetics is a field in which ethical and social problems have been most pressing. Despite this, new tests often are introduced almost immediately after the isolation of a new gene. Considerations of whether a particular test should be introduced at all seem to have little effect on the development and introduction of new tests. This paper explores how this lack of social and ethical assessment can be understood. In order to do so, the sociohistorical context of clinical genetics and the way in which this practice came about will be analysed in this paper with respect to the Dutch service for clinical genetics. It will be argued that the fragmented way in which tasks and responsibility have become distributed within clinical genetics services has led to a situation in which actors seem to have no control over the introduction of genetic tests.  相似文献   

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